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Tuesday, April 06, 2004 8:05 AM---The Hearing

Wowzers- that ride seemed forever and pain whew baby....... I sit in the back seat of my new car that I can't drive any longer - so I can keep my legs up........ Carsick---- u name it......... I felt it.

We got there on time and sat for what seemed like forever in the waiting room ( with my lawyer )- guess he had not given some much needed papers to the Judge so the Judge could read them beforehand- so when Judge was done with the people / person before me- he had to have time to read my info then called us in....... Gosh- don't think we got home till after noon even.

Well- I decided on the wheelchair , instead of the scooter and good thing, mercy the room wasn't that big............ definitely would have damaged someone.

My mother went in as well, she sat in the back to be witness if Judge wanted to get any questions from her but he did not.

My mouth kept drying out- I was in pain, tired- etc.......... and he'd ask questions to the fuzzy Moon/TJ headed dry lipped thing......... I'd answer to the best of my ability...... My lawyer finally gave me a glass of water as I was almost not able to speak due to the dry mouth..... guess thats from one of my many medications.

The Judge welcomed and swore My lawyer and I in and the vocational expert. 

( By the way- I wore a pull over turtle neck- windbreaker pants - ( one of my sons --------- geeeeeesh those things are noisey......... but nice if you spill something on yourself because, they don't retain the liquid! I also had on my slip on sandal shoes ( only thing I've been really able to get on my feet in 2 yrs and just started wearing those about a year ago -if that ) ---- and a camaflouge pullover jacket ( my sons )

My nails were cut and naked, blek---- but good for court ......
I wore no makeup- blek but hey I was lucky and no one saw me that knew me except for my parents. ( whew )

Once welcomed in Judge asked me if I wanted to be called by my married name- which no married woman who took her maiden name back would want...... so I said no please - I prefer my maiden name........ he thanked me- I had just got my ss card changed over approx a month ago- this is something that never crossed my mind that needed to be done......... I completely forgot due to the illness and all the hearings with my x I guess.

So , he did refer to me with maiden name....

He then asked me questions such as.
How old I was?
When was my birthdate?
Am I working?
Did I work since I claimed I was dis-abled?
Did I work before that?
And when/where
Do you have children?
How many?
How many live in your house?
Is your house one level?
If not - do you go up and down steps?
Then the questions of what made me feel I was unable to work now......?  ( Chronic pain - was my answer )
There was no mention of EDS at all - nor VEDS........ 
Then he turned to my lawyer and said, I am now going to turn the questioning over to the lawyer- thank you much for coming......

I figured at this point he meant- he was going to question the lawyer and my lawyer was going to do the answering...... but instead my lawyer questioned me LOL......
More water please......

My lawyer sat right beside me and asked me many questions- medications were listed ...... avinza had to be explained as they not knew what that was...... 
I was asked if my doctor or if I thought my doctor may be trying to over medicate me or possibly get me addicted to the medications...... Geesh- at first I wasn't sure what to say to that one...... What dr would purposely harm a patient, then I thought to myself- hmmmmmmmm many do it....... look at my son!  So my answer was:

No- I really highly doubt that Dr. Ginther would do such.  He is very well mannered , careful and thoughtful of my condition and basically wanted to help my chronic pain level so I could get some relief and perhaps with hope some pain relief.

Let see - what else did he ask- What was the first disabling happening to me ( the double aneurysms- compartmental syndrome )
What happened and how long did it take you to heal after that surgery?  ( I was in a wheelchair and in  a lot of pain- and I did not recover- I have no feeling in much of that leg on the inner side- it is basically dead now..... )
You had a mishap with your other leg shortly after is that correct?  ( Yes it is)
What happened and when? ( I was getting out of a truck to go to my dr appointment and barely knicked my knee on my "walker "- as I was using a walker to get around at that time- and my knee /leg swelled up approx 3 times normal size )
Did you end up having an operation on it?  ( Yes I did )
How long was it after your aneurysm surgery?  ( about 4 months )
How do you feel this operation has disabled you?  ( In many ways- I no longer am able to bend it nor walk much without pain )
How do you get around in your house?  ( Depending on the severity of my pain, I choose the scooter- wheelchair, cane and or furniture such as counters for propping self )
Do you go up steps?  ( No , I do not )
Do you drive?  ( No , I do not )
You had another happening to your right leg right?  ( Yes I did )
Tell me about it- ( A cell phone was on my keyboard tray and barely knicked my leg- and my leg swelled about 3 x normal size )
Did you go to the hospital ( Yes I did )
Did it get infected, ( Yes, drs let that go approx 3 months and it became infected- so had to have it cut out )
How long did you end up waiting for that to heal ( It still isn't totally healed, it heals, but re opens during too much stress-etc. )
How long does it last when it re- opens? ( Approx 2 weeks - )
How and who treats you for that ?  ( Dr  Ginther and we use a cream and bandages )
Do you cook/clean/vacuum?  ( No- I do not)
Who does these things for you? ( My son and my mother )
How often do you see Mom ( she cleans approx every two days but if I need her to- she would do it dailly as I see her every day- she lives only a field away )
How are you paying for items now? ( Welfare- it was all I could do at the time )
Who does your shopping ( Mom and Dad pick up my groceries )
How long can you sit, with your feet down, on a small stool ( Not long at all )
How many times in a 15 minute period do you feel you put your feet up higher for elevation........ ( O gosh- hmmmmmm- I would guesstimate about 10 times, most likelly more)
How long can you stand ( No longer than a minute without severe pain )
You have pain in more areas than just your legs , is that correct?  ( Yes- thats correct  )
Where else do you have pain?  ( Everywhere- )
Do you feel your medications effect you?  ( I am not sure but imagine they are causing some of my problems such as the foggy head feeling and chronic tiredness- yet I will lay down but can't sleep due to the pain. )
How many times do you think you nap during a day?  ( O gosh )
On a bad day?  How many bad days would you say you have ?  ( Most everyday is bad and I'd say approximately 5 times a day I lay down and sometimes I will be lucky enough to catch a few hours of sleep but most times not , so I will get up to try to do something to help take my mind off the pain )
What type of things do you do in a 24 hr period.?  ( Not much of anything really- I can no longer put the amount of time into my interests as I once could- I read books for a little bit but lose interest- I will read e-mail off and on- but can't sit at the computer for long periods..... I love to mess around with graphics on my computer to help take my mind off pain but really almost cant sit long enough in one sitting to accomplish anything there anymore either )

I'm sure I am leaving out a few questions but gosh can't remember more right now- I just felt rotten and couldnt even stand whilst there , so the not being able to get up for even my normal minute about drove me nuts as my legs were in just too much pain from the drive.

I do know I was asked about prior jobs- which really I had none. I worked part time sub at school, depending where they needed me- playground teacher- teachers aid, sub teach- english teachers sub- and then some but was not often , not even enough to do taxes with.

When married, approx 85 to 92 - we owned a machine shop and pet shop, I ran and did both- secretarial and such and even ran parts- I was asked how much I lifted then, and I said not much, my then husband did the lifting, I just ran the machine....... I also had my 3 kids with me at all times....... But never received a paycheck.  I was co-owner without monetary benefits. I was just there to help.

( Grrrrrrrrrrrrrrr, I could kick myself for that, if I could raise my legs that high that is......... I put so much time in for him to help and for no money yet----- oh dropping that subject - it only stresses me )

Ok, this was about it, then the vocational expert was asked questions by the Judge- many things they spoke were so foreign to me- She did question the machine shop/pet shop- but when she realized how that went then the Judge and she finished up with basically, she felt that TJ could not really have any type of work suitable for her condition and especially the medication amount- my limitations, the dangerousness and the napping per day.

Judge asked if my lawyer agreed with her, he said yes.

Judge thanked us for coming and out we all went.  What a long excruciating ride....... Mercyyyyyyyyyyyyyyyyyyyy.   ( actually its approx 30 min but by the time I get in/out of a darn vehicle and the carsick feeling, it felt like 3 or 4 there and 3 or 4  back......

My lawyer feels that it went well- we will most likely hear from him in a couple mnths he said.  He said ' I dont want you to keep checking mailbox everyday hoping it will be there tomorrow..... but that he felt instead of the usual six month waiting period that he feels we will know within a couple of months.

There- how's that for a book ?

Its a bite typing with short nails, I think I went from typing approx 120 wpm to 4 letters per minute, wow how do people type with no nails........

Waiting for them to grow back!!!!!!

Oh- also- unbeknownst to me, my son Kenny that had passed away in 97 due to ruptured aneurysm did have much info input into this hearing....... they said that it was genetic, progressively worsens and basically no cure.

Hope all of you are as well as can be............
Hugs- TJ

Thursday, May 20, 2004 4:16 AM

 

My SSI went thru but have to wait 2 to 3 more months before anything starts - he ( my lawyer ) thinks- he said - anywhere from 2 weeks to 2 to 3 months but , I got a letter today saying Fully Favorable-   But you really should read some of it, there are parts that if you guys read them- you might be shocked.... they wrote that VEDS is NOT enough reason to get SSI but several other factors helped make it so. Which Its kinda early/late to talk about right now- legs were botherin me so got up to swig a bit of beer- these darn methadones aren't doing anything I don't think- and will tell him that on the 26th- ( day of appt )- gosh, what in the world - should I suggest to the man that might work....... morphine hasn't seemed to even at 90 mgs per day and neither has morphine 30 mgs and 12 methadone a day......... whats left? Oh don't forget i also have breakthru lortab 10's with acetemophine or whatever- lol- i'm way too tired- will write more later- tomorrow- tonite, this morn- whatever.   Sweet Dreams all.   Sweet Dreams- Hugssssss TJ   P.S. mine is only going to be like 540 or less per month..... due to never having a job.

Yes it is, seems like quite a bit to me - plus I can - if I can find enuf jobs - making graphics and websites etc- make up to 800 per month without it disturbing those funds.  So not bad at all-.... and beings you are the only one who even acknowledged that I exist...... if you want to know the rotten parts that can happen because EDS and VEDS are NOT enough to get SSI in Michigan- I'll tell ya via personal e-mail.     Hugs- TJ

go to very bottom and read that first cuz i had a major bull crap problem happen just a few ago- so pls go to very bottom first and read it.

Hugs Bonnie,   Well the first page states- Fully Favorable- but you go on to read the buggar and it can be very deceiving- I had to call my lawyer to make heads or tails outta it, because it would step on itself basically.  Even though it started out with Fully Favorable- the next paragraphs state that another office will process the decision and send you a letter about your benefits.  Your local S.S. office or another may first ask you for more information.  If you do not hear anything for 60 days, contact your local office.   The Appeals Council May Review the Decision on Its Own   The Appeals Council may decide to review my decision even though you do not ask it to do so.  To do that, Council must mail you a notice about its review within 60 days from the date shown above.  Review at the Council's own motion could make the decision less favorable or unfavorable to you.   Then it has how to file an appeal........ this is all on the first page- kinda jumps around huh- like a Stephen King novel- very scarey- at first you feel relieved cause it states you were fully favorable then bam - it makes it sound like you have yet to go through another badgering session.    There are about 15 pages or more all together.   Second page talks about Time to File an Appeal- Time to Submit New Evidence, How an Appeal Works.- The Appeals Council May Review The Decision On Its Own- If No Appeal and No Council Review.   Third page- is , If you have any questions call SS office or visit and has the addy and phone # -plus my married name ughhhhhhhhh told them I have taken my maiden name back the goofs- even asked them at the hearing to call me by my maiden name.   Fourth Paper is Social Security Administration Office of Hearings and Appeals- and basically has a place for signature of approveing the fee agreement between the claimant and her representative subject to the condition that the claim results in past-due benefits.   States- that his determination is limited to whether the fee agreement meets the staturory conditions for approval and is not otherwise excepted.  I neither approve nor disapprove any other aspect of this agreement- signed the Admininstrative Law Judge.     ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~   Now comes even more scares- its the Decision process-   Has name in the case of and claim for etc- SS # blah blah- and then begins with Procedural History.  It goes back and tells everything that is /was submitted for evidence - which, girl, I had tons!   So it begins that this case is before the Administrative Law Judge on a request for a hearing filed by the claimant, who is dissatisfied with the prveious determination finding that she is not disabled- ( the one that they turned me down on -)  The claimant filed a Title XVI application for ssi on Feb 28,2002 (  protective filing date), alleging disability since January 30, 2002.  After a proper notice, a hearing was held on April 5, 2004 in Flint, MI.  The claimant personally appeared and testified represented by Victor Galea, Sr, an attorney.  Also testifying was Pauline McEachin, an impartial vocational expert.   The issues in this case are whether the claimant is under a disability as defined by the Social Security Act and if so, when the disability commenced, and the duration of the disability.   Evaluation of the Evidence.....   After a thorough evaluation of the entire record, the Administrative Law Judge concludes that the claimant has been disabled since January 30 , 2002.  The claimant has not engaged in any substantial gainful activity since the disability onset date.  The claimant has the following impairments which are considered to be " severe" under Social Security Regulations:  Ehlers-Danlos syndrome, status post ruptured aneurysm, and status post torn ligament in the left knee.   The medical record reveals that the claimant was admitted to the hospital on January 23, 2002 after she had developed severe, spontaneous swelling of the right calf.  An ultrasound showed some decreas3ed ankle pressures.  Arteriography revealed two small posterior tibial artery aneurysms.  There was some vasospasm at the level of the foot.  She had quite a bit of edema and tenderness in the calf.  Her leg was kept elevated and compression wraps were used, as were antibiotics..... ( that is so not true- they did not at that point give me antibiotics nor use compression wraps- this is when the dang dr wanted me to have legs in air and head down so he elevated the bed with legs completely up and head so far down I was vomiting.  After he left the room- I put the bed up- and good thing as I read later- the clot could have traveled to my lungs and killed me. )   Within 24 hrs of discharge the claimant again presented to the Emergency Department with a chief complaint of severe, throbbing right leg pain.  The claimant was hospitalized again during the period from January 30, 2002, to February 5, 2002 for right lower extremity compartment syndrome due to a ruptured aneurysm in the posterior tibial artery.  She underwent ligature repair and medial fasciotomy on January 30, 2002.   On March 18, 2002, Dr. Vasquez reported that the claimant was using a walker for ambulation and that she had a tendency to bruise easily.  She had not really benefited from a course of physical therapy.  She had a recent injury to the left knee ( LOL - yah i got out of the truck to go see this particular dr and barely knicked it on my walker , getting down from the truck - it was 3 x normal size by the time I got to his office, I had a hell of a time getting up on his darn table- but he insisted and he sent me home that way instead of to the hospital and as u will see further down here- he should have probably sent me directly next door to the hospital )   An MRI of the left knee obtained on April 2, 2002 showed a quadriceps tendon tear, chronic anterior cruciate ligament tear, focal patellar tendinopathy, and bursal effusion.  The claimant was diagnosed as having an acute rupture of the quadriceps tendon of the left knee.  On April 5, 2002, Dr R. McFarland, an orthopedic surgeon performed a tendon repair.  The physician advised that the claimant would likely require prolonged support for ambulation for a year or longer.  During a postoperative follow-up visit of April 16,2002, the claimant was still demonstrating significant discomfort in her right leg......  She had a significant danger of re-rupture of her left quadriceps.  She started in physical therapy in May 2002.  At that time, she had very little knee flexion and was unable to straight leg raise.   An MRI of the claimant's right lower leg obtained on August 25,2002 showed a large subacute hematoma in the subcutaneous tissue lateral to the calf.  There was apparent contusion to the muscles of the anterior compartment.  Dr. McFarland noted that the claimant had a large hematoma, which occurred from a very trivial injury.  ( must be when cell phone barely knicked leg )   History, however, indicated fragile vasculature and/or connective tissue disorder.  The claimant was hospitalized for several days in August 2002 for acute intractable right leg pain/edema.  Dr J. Howland assessed that the claimant had Ehlers-Danlos Syndrome with a right leg hematoma from an aneurysm rupture.  ( Gosh Bonnie, they stated that I had ehlers from the second episode which would be the ligament tear - so what is this hold off till August for I wonder )  The claimant was admitted to the hospital again on November 10, 2002 secondary to pain and swelling in her right shin with obvious cellulitis.  It was determined that she had developed an infected wound in her right leg secondary to her Ehlers-Danlos syndrome....... ( Geesh- again, why secondary, why not due to having Ehlers- which I think it was- don't you ?  How many end up that bad from a cell phone nic.....)  She underwent two irrigations and two debridements, ( Which left her in tears he should have said, cuz the dr didnt even wet the packing, he just pulled it out dry , dry, dry, and I nearly hit the ceiling, God that hurt so bad ! ) which cleared up the wound quite well.  She was discharged on November 18, 2002 after receiving a week of intravenous antibiotics and oral antibiotics.  She was to continue with home care and wound care.  She was to follow-up with a plastic surgeon for a possible skin graft. ( had nurse care for another 8 weeks or so at home, 3 times a week but they didn't know I wouldn't let her touch it, I cleaned it MYSELF - only thing I let her do was measure it )  Whe was hospitalized during the period from December 7, 2002, to December 19, 2002 because of abdominal pain.  A CT scan of the abdomen was essentially normal ........  ( then how come he wanted to run that dang scope in me?  thats a lie too- it was horrible colitis hell they had anyone that come in wear robes-masks etc )  She was managed for pain , nausea, and vomiting.  She was to resume her home medications.   On August 27, 2003, Dr. M. Ginther, a treating internist, advised that the claimant had severe Ehlers-Danlos syndrome, which had caused the claimant to experience chronic leg pain and swelling along with recurrent leg infections.  She was unable to engage in prolonged walking or standing, and her legs prevented her from carrying anything heavier than one or two pounds.  Dr. Ginther believed that the claimant was permanently disabled from working.  On March 16,2004, Dr. Ginther reiterated that the claimant was experiencing severe, chronic pain that interfered with all aspects of her life.  She could not perform household chores and when sitting needed to elevate her legs to a height of 60 degree's.  She required an ambulatory assistive device and could not be on her feet for more than one-minute at a time.   The claimant testified at the hearing that she uses a scooter to get around.  While seated, she must keep her legs elevated.   ~~~~ A part that I consider to be stating, Ehlers alone is NOT enough to be considered a disabling disease ~~  You agree?  In Green-   Although the claimant has impairments which are considered to be "severe," they are not attended, singly or in combination, with the specific clinical signs and diagnostic findings required to meet or equal the requirements set forth in the Listing of Impairments.   A determination in this case cannot be based on medical considerations alone.  Therefore, it is necessary to proceed to steps four and five of the sequential evaluation.  Steps four and five require a determination of whether the claimant has, during the time at issue, retained the residual functional capacity to perform past relevant work, and if not, to perform other work existing in significant numbers in the national economy consistent with the claimant's age, education and past work experience.  In order to make these determinations, it is necessary to assess the claimant's mental and physical residual functional capacity.  Residual functional capacity is what the claimant can still do despite limitations due to the impairments.   The claimant has the residual functional capacity to do the following:  she is otherwise capable of performing sedentary work activities except that she needs to keep her feet elevated frequently throughout the day; she must be allowed the opportunity to recline, rest, or nap frequently as needed; and due to the effects of chronic pain and fatigue she cannot sustain concentration, persistence, and pace on a routine/continuous basis to complete required tasks of a job in an eight-hour day, for five days, and 40-hour per week or an equivalent work schedule.  The claimant is unable to do sustained work activities in an ordinary work setting on a regular and continuing basis.   This conclusion is supported by the opinion of the treating source, and the claimant's daily activities which are substantially restricted.     In accordance with Social Security Ruling 96-6p, the Administrative Law Judge has considered the administrative findings of fact made by the State Agency medical physicians and other consultants.  These opinions are weighed as statements from nonexamining expert sources.  New medical evidence from the treating source is given more weight than the State Agency opinions.  Because of  new vocational evidence, the Administrative Law Judge finds that the State Agency opinions are no longer fully supported.  The State Agency did not adequately consider the entire record, including the subjective compllaints and other allegations of the claimant.   The claiimant's description of her limitations is consistent with the record when considered in its entirety.  The claimant cannot perform her past relevant work.   Since the claimant cannot perform past relevant work, the burden shifts to the Commissioner to show that there are other jobs existing in significant numbers that the claimant can perform, consistent with the medically determinable impairments, age, education, and work experience.  The claimant was 40 yrs old on the date her disability began.  The claimant has at least a high school education ..... ((( I actually have an associates degree in legal assisting- ))))  Considering the claimant's residual functional capacity and vocational factors, the issue of transferability of skills is not material in this decision.   Residual functional capacity is the claimant's maximum remaining ability to do sustained work activities in an ordinary work setting on a regular and continuing basis.  A " regular and continuing basis " means 8 hours a dayk, for 5 days a week or an equivalent work schedule ( soceial security ruling 96-8p).  The claimant must have both the mental and physical abilities to perform sustained work activities.   Because the evidence supports a finding that the claimant has had a substantial loss of ability to meet the demands of basic work related activities on a sustained basis, the unskilled sedentary occupational base is significantly eroded and a finding of disability is justified.  A finding of disability is supported by Social Security Ruling 96-8p.   The Commissioner has promulgated medical- vocational rules found in Appendix 2, Subpart P, Social Security Regulations No. 4 which take into account the claimant's age, education, work experience and residual functional capacity.  The claimant's medical-vocational profile most closley parallels Rule 201.27 of the Medical-Vocational Guidelines, which directs a conclusion that the claimant is " not disabled" within the meaning of the Social Security Act.  However, due to the nonexertional factors that may erode the job base which the claimant is able to perform, the medical-vocational rules cannot be used to direct a finding.  However, they may be used as a framework for making a decision.  The claimant's capacity for the full range of work has been significantly compromised by her nonexertional limitations.  Therefore, using the framework of  Medical- Vocational Rule 201.27 Appendix 2, Subpart P, Regulations No. 4, The Administrative Law Judge finds that significant numbers of jobs do not exist in the national economy which the claimant is capable of performing.   The Administrative Law Judge called upon the vocational expert to identify occupations a hypothetical person with the claimant's residual functional capacity and vocational factors described above could perform.  The vocational expert testified that such a person would be unable to perform any jobs existing in the significant numbers in the national economy... the vocational expert's testimony was consistent with the information contained in the Dictionary of Occupational Titles ( Social Security Ruling 00-4p).  The Administrative Law Judge finds that the number of jobs the claimant is able to perform is reduced to fewer than significant numbers.    In view of the foregoing, the undersigned finds that the claimant is disabled in accordance with the provisions of 20 CFR 416.920(f).   Findings:   After consideration of the entire record, the Administrative Law Judge Makes the following findings:   1. The claimant has not engaged in any substantial gainful activity since the disability onset date.   2.  The claimant's impairments which are considered to be " severe" under the Social Security Act are as follows: Whlers-Danlos syndrome, status post ruptured aneurysm, and status post torn ligament in the left knee.   3.  The claimant's impairments do not, singly or in combination, meet or equal in severity the approrpiate medical findings contained in 20 CFR part 404, Appendix 1 to Subpart P ( Listing of Impairments )   4. The claimant's allegations are credible.   5.  The claimant has the residual functional capacity to do the following:  she is otherwise capable of performing sedentary work activities except that she needs to keep her feet elevated freqently throughout the day; she must be allowed the opportunity to recline, rest, or nap frequently, as needed: and due to the effects of chronic pain and fatigue she cannot sustain concentration , persistence, and pace on a rotuine/continuous basis to complete required tasks of a job in an eight-hour day, for five days, and 40-hour per week or an equivalent work schedule.  The claimant is unable to do sustained work activities in an ordinary work setting on a regular and continuing basis.   6.  The claimant is unable to perform her past relevant work.   7.  The claimant was 40 yrs old ( younger individual, 18-44) on the date her disability began.  The claimant has at least a high school education.   8.  Considering the claimant's residual functional capacity and vocational factors, the issue of transferability of skills is not material in this decision.   9.  Based upon the claimant's residual functional capacity , and vocational factors, there are no jobs existing in significant numbers which she can perform.  This finding is bassed upon the following:  Social Security Ruling 96-8p, the framework of Medical Vocational Rule 201.27, and vocational expert evidence.   10.  The claimant has been under a disability as defined by the Social Security Act and REgulations since January 30, 2002.   DECISION   Based on the Title XVI application filed on February 28, 2002 ( protective filing date ) , the claimant has been disabled since January 30, 2002, under section 1614 (a) (3) (A) of the Social Security Act , and the claimant's disability has continued through at least the date of this decision.   The Social Security Administration must also determine whether the claimant meets the income and resources and other eligibility requirements for supplemental security income payments, and if the claiimant is eligible, the amount and the month(s) for which the claimant will receive payment.  The claimant will receive a notice from another office of the Social Security Administration when that office makes those determinations.   Signed by the Administrative Law Judge   And get this Bonnie, due to the Tuscola County courts being unjustifiable and my x getting custody of the younger one- well both- but the older ran to me- and the Judge can force him to go back to kens- but ken didn't fight it and that is because John got kicked out of school due to a dream he told other kids he had and in the dream he killed his parents- guess that scared ken cuz he has not tried to even speak to John - except for when he found a female - then he tried to make himself look good I am sure- but anyhow- we have been to hearing after hearing etc- I have had papers thrown at me while in HOSPITAL saying they would take me to jail if i didn't pay and I never had a damn job- I stayed home to raise the kids.......   I got another paper yet today- and we had already had another hearing a while back stating that now ken owed but ken didnt want to pay back to the date the Judge demanded so- he filed yet another hearing which is the next one coming up- and - just a few ago my Aunt brought my mail over and here is another gosh dang contempt of court bill for 4 thous- i could just puke-   I've been ill, in pain for how many years- he has dated- married, gone here and there, had fun and he filed due to the fact of the kids monies to begin with and now he may possibly get my back pay for child support even though the last hearng was that he was to pay me???? but that hearing was wiped away due to the fact that ken didnt want to pay as far back as the judge states he had to- and now its again going all his way bonnie, he will either end up with what back pay I have coming to me-------------- or something and god damn he should not---------- grrrrrrrrrr sorry , but it just got here and im so pissed right now- i have had these papers come to me in hospitals, almost on my death bed and yet to this day-2 friggen years later , and his wife most likely hears his side and his grrrrrrrr family full of lies and she thinks im some mom that doesnt love or pay for my kids........... here i go again, tear flow party- off to bedroom- what else is there to do in life, im getting to a point here- that if this ass gets that bonnie, im gonna screammmmmmmmmmmmmm run and fall off the face of the earth!!!!!!!!!!!!!!!!!!!!!!!

Thursday, May 20, 2004 7:21 PM

Thanks but apparently , my evil x is at it again and he will end up with it...... 2 yrs of pure hell he has put me thru- jail threats as I lie in a hospital bed near death and he's at it again....... he friggen had to have been keeping tabs to find out when I'd get this , I've told no one that knows him.....   And today I get a paper saying I owe him or I go to jail so there thats all blown up in smoke- guess I should have spun my wheelchair right over into a river....... and let him have his greedy grrrrrr money- whole divorce was due to a settlement from a child of ours that died to begin with and the **** didnt want the other 2 having their fair share of the settlement money- told me if they got more than x amount of bux he'd file so I waved.....   The courts believe his lies, I lost almost everything, and ended up sick and am to this day putting up with hhis eveil crap- so I should just take those SSI papers down there and give them to him and say ehre u go thanks for making my life miserable for 20 yrs plus the years ive been sick enuf i cant even get out of my house while u dated several online women and married one now that u met five months ago- heres your wedding givt take it all- take everything, take all u want- cuz the s.o.b. wants me in the nut house im tellin ya- he does he even said it when he was in tenesee when he fricken abandoned me and all 3 boys in 92 but  I STUPIDLY TOOK HIM BACK BECAUSE I THOUGHT THATS WHAT GOD WOULD WANT ME TO DO......... GRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRR IM A TOTAL IDIOT.............. now 2 yr fight so ken can have that too- yeahhhhhhhhhhhhhhhhhhhhhhhhhh way tooooooooo gooooooooooo TJ

Thursday, May 20, 2004 7:45 PM

Major Pain in the butt:

I hate to be one to you all but - you guys have a right to know- I thought I had some good news- got notification my SSI went through- dated back 2 yrs so 2 yrs back pay - rah rah rah..............   Won't ken be happy with that ?????????????????   Remember the last hearing we had over custody?  Which most know he had won both boys unjustifiablly with evil lies and an evil lawyer- well, John ran off and stays with me- last hearing Judge demanded my part be dropped as I NEVER WORKED ALL OUR LIVES to begin with so I could be a     stay at HOME MOM    - ONLY to be charged 110 per week child support to him, someone who would NOT even change one darn diaper while they were growing up much less do anything else!!!!!!!!!!   Last hearing my owings were dropped and now due to the fact John ran this way, ken now owed child support- he disagreed with HOW FAR BACK IT WENT even though he makes near six hundred a week and I use welfare ( embarrassed to say but is a must due to my illness ) - so he appealed for yet another hearing and that is on June 4th- ----I have not felt well for 2 yrs here- I even got papers threatening to take me to jail while I was in a hospital bed dying..........   June 4th, the new hearing is for his whining about being told by the Judge that he HAS TO PAY me now because John lives here- and I can make no money due to my illness............    I got my SSI papers yesterday- back pay of 2 yrs- oh lets see, guess that amounts to the gosh darn arrearages he somehow wormed his way back into me owing now because of his actions of taking me back tp court so he wouldnt have to pay.........   I got some more papers in the mail today - a nice juicy thick packet saying I owe 4 thousand back child support for the 2 years Ive been ill !!!!!!!!!  and a paper saying if I do not show up on JUNE 9 , i will be held in contempt of court and placed in jail.   HOW DOES HE DO THIS, how does he keep getting away with this crap......... ??  I don't get it............. I didn't even want his child support when the court told him he had to pay me i said no no no noo------- But they wanted him to........   So- there we go- I am a major pain in the butt- I am getting used to a heaping dose of 12 methadone a day and one 30 mg morphine etc etc and then...... thissssssssssssssss   They have my medical records, they have all of it, the friend of the court- the court system , everyone - everything.......... I've lost it folks- I can deal with this crap anymore- i know ive been showing a strong side thru all of this but its gone- when I received that paper today , with yet one more threat of putting me in jail - while I have been stuck in a house for 2 yrs- no driving my new car- no going here or there- etc and he's went all over Gods green acres while i spent numerous days/nights in such severe pain it would make a grown man cramp over and not budge-   Can't take it any more- I can't deal with it any more- I can't believe this............. I wanna take everything I own and just drive down to his house and say " HEREEEEEEEEEEEEEEEEEE" have at itttttttttttttttttttttttt.  Just LEAVE ME ALONEEEEEEEEEEEEEEEEEEEEEE.   Sorry- I dont know when I'll show my face online again............ I am one miserable pain in the butt.   Forgive me- but you guys do have a right to know why I am not on- I have Dakota ll this wknd beczus he is helping his wife move her belongings here from PA.............. its not my wknd but he is  BEING NICE and letting me have him. awwwwwwwwwwwwwwwwwwwwwwwwwww aint that sweeeeeeeeeeeeeeeeeeeeet------- so another wknd of stuffing those tears back in those huge ugly eyeballs of mine................... while i keep seeing that paper in my head that sayS HELD IN CONTEMPT OF COURT.................. OOMGGGGGGGG........   i will be spending a lot of time in my bedroom- im sorry- i just cant take this any longer.   Thank you all for being who you are and for helping me hold up as long as I have but its come that time- i cant do it anymore- 2 yrs of this, i cant do it anymore i cant i cant i cant.................

Monday, May 31, 2004 6:36 PM

Not too sure about that- I am granted it and waiting yet to hear from them after receiving a fully favorable notification- but it did state on there that ehlers danlos syndrome- and or- vascular ehlers danlos syndrome were not enough by themselves to warrant SSDI or SSI........ its the what you are unable to do at the time of application and hearing- if it disabled you from doing something for over a year.  In Michigan anyhow- I was shocked when I read that ehlers danlos was NOT a good enough reason by itself to warrant disablement for SSI or SSDI....... what are they thinking?   Congrats- hugs TJ

Wednesday, June 02, 2004 6:07 PM

Hmmmmmmm am wondering now why drs never tried Darvocet or Tylenol 3 on me for breakthru pain meds- has not even been mentioned..... gosh vicodin bothers my ulcer/colitis bad- but I am not having a problem with the morphine- its just still not enough- 120 and still need more I do- the lortab tens are for breakthru and I tell ya they dont touch me- they do touch mom- i gave her one for her pain and she said it worked and fast - Im like omg- they dont even make a diff with me!   What are you talking about on the responses? LOL- if you meant about the letters for the hearing, my folder is quite full- I will be spending a lot of time printing.   I do know most wouldn't know what to say to comfort- but sometimes it feels in the ceda group that some go for days without being heard- yep am a member of Sue's VEDS group- not too much goes through there.......   You are going through a lot of pain torture too- so sorry to hear that- as for sitting on the floor- I've not been able to do that for yrs , even b4 diagnosis but didn't really understand why- now I do- and when I sat in the kiddy chairs , i think I left the school in that shape- walking out the door looking like I was still sitting in the chair......... lol! Painful-   I have the TMJ as well- I hate it- I grind teeth at night- so I'm told- I hate when jaw dislocates- that hurts so bad for about a week, tis almost like you cant bite down on anything...   That there being listed will help with your ssi too- how is that coming anyhow?  Any hearing date set?  Remember mine was considered fully favorable- I haven't heard anything since but perhaps thats a good thing that it will be waiting until after this dumb hearing........ that way there is no amount disclosed.   Hugs and don't work too hard packing-Love TJ